Dementia care facts and figures
Discover the shocking numbers behind the stories of the UK’s 1m dementia carers.
Find out the facts about dementia careCampaigns
It’s time to end the injustices and inequalities that dementia carers face
We campaign alongside dementia carers for changes that are urgently needed. We won’t stop until all carers have the support that they desperately need.
~ 1000000
people living with dementia in the UK – this number is growing
Source: The Economic Impact of Dementia
The Economic Impact of Dementia
9 in 10
dementia carers are reaching crisis
Source: Dementia Carers Count 2024 Survey
What if…I’m not there to care?
1 in 2
are not getting any support
Source: Dementia Carers Count 2024 Survey
What if…I’m not there to care?We want to highlight the unfairness that comes with a dementia diagnosis, as well as drawing attention to the huge contribution dementia carers make every day across the UK. Helen Pyper, Head of Policy and Campaigns
Dementia Action Week 2025
This Dementia Action Week, we’re speaking out and we’re speaking up for dementia carers who don’t have any alternative care arrangements in place. This is the case for over three quarters of dementia carers.
We invited dementia carers to share their experiences of not having alternative care plans in place. We are sharing dementia carers’ experiences and worries with policymakers in Wales, Scotland and England.
We’re highlighting the urgent need for all dementia carers to have the support they need to care today and to plan for tomorrow, when they can’t care.
Our campaigns and recommendations to improve support for dementia carers
What if…I’m not there to care?
Our 2024 survey findings reveal that most dementia carers have no arrangements in place for when they aren’t there to care.
Manifesto for Dementia Carers
Read our manifesto for dementia carers, based on the things dementia carers tell us they really want and need.
Invisible
Dementia carers shouldn’t feel invisible. We have recommendations informed by our 2023 survey to stop carers from feeling like they don’t matter.
Feeling inspired? Join our campaign community
Hear more about the latest campaigns and actions to support dementia carers across the UK