Sharing dementia carers’ views with the Casey Commission
What if dementia carers had a single point of contact for support?
We welcome the work of the Independent Commission for Adult Social Care, led by Baroness Casey, as it considers effective and sustainable reforms for adult social care.
With nine in ten dementia carers reaching crisis points, changes to available social care support cannot come soon enough.
While much exists on paper and within legislation, which should make a difference to carers, the reality is that support is not being delivered consistently on the ground and carers simply don’t have the time or the energy to advocate for themselves. Frances Lawrence, CEO, Dementia Carers Count
Listening to dementia carers
Day in and day out we listen to dementia carers. We understand the struggles that many are facing. Many of our team members have experienced the challenges of caring for someone with dementia first hand.
We are delighted that the Commission is listening to unpaid carers. We would like to support the Commission to understand further the specific support needs of dementia carers directly from carers themselves.
What would make a difference to dementia carers
We have shared with Baroness Casey what dementia carers have told us would make the most difference to their ability to cope and their capacity to care.
Read our briefing and recommendations informed by dementia carers
Benefits of having a dementia care coordinator
A dedicated dementia care coordinator could make a huge difference to those caring for someone with dementia. This would mean that carers have a single point of contact if they want or need information and advice on anything ranging from legal matters, eligibility for benefits, understanding behavioural changes to accessing counselling, peer support and respite. Helen Pyper, Head of Policy and Campaigns, Dementia Carers Count
Thank you for sharing your views
We’ve had very helpful feedback from carers about the benefits of having a dementia care coordinator as a single point of contact to support and guide you through your experience of caring for someone with dementia.
We will be sharing carers views and comments with the Casey Commission.
Share your experiences of social care support
If you’d like to share a positive or negative experience you have had in terms of accessing social care support, please email [email protected]
Keep up to date with our campaigning work
To keep up to date with our work to change the future of dementia care, you can join our campaign community.
About Dementia Carers Count
We campaign with dementia carers on the issues that matter to them. We also provide free, confidential practical and emotional support to carers, through online information and resources, support groups and our Carer Support Line.
Call 0800 652 1102 Monday to Friday 9 – 5.
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