Take part in the Big Conversation on Care
Your opinion counts
Take part in The Big Conversation on CareToday marks the launch of The Big Conversation on Care. It’s an opportunity to have your say on the future of care and support.
Baroness Casey has announced the launch of The Big Conversation on Care.
Described as the most ambitious public conversation in a generation, this opportunity gives the public a say in shaping the future of adult social care in England.
We warmly welcome today’s announcement. For too long dementia carers have been overlooked and invisible in a broken social care system.
We regularly hear from carers who are not accessing the financial support they are entitled to, who have never had a Carer’s Assessment and who are reaching breaking point. Helen Pyper, Head of Policy and Campaigns, Dementia Carers Count
When we are old or disabled, or have a serious illness, who should support us and how?
The public is being asked for their views on this question.
You can put forward your own proposals for how care should be provided and you can vote on other people’s ideas.
Why does the Big Conversation on Care matter to dementia carers?
Over half of people who are looking after someone living with dementia are doing so on their own without any support.
Many say they didn’t choose to become a carer.
Many don’t even see themselves as a carer, but rather as a husband, wife, partner, daughter or son or friend or neighbour.
But they are taking on a huge range of responsibilities and coping with the unpredictable nature of a progressive condition. Often with no break. Often without access to advice and guidance.
Instead of being supported after a diagnosis, dementia carers are all too often left feeling overwhelmed and alone. Some may go on to care for someone for many years.
of dementia carers are caring 24/7
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Surveydementia carers have provided care for over five years
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Surveyof dementia carers often feel like they cannot continue to provide care
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 SurveyWe encourage everyone to take part and have their say. Everyone’s view counts and will inform the recommendations made by the Commission.
What support do you think should be available to people caring for someone with dementia? Helen Pyper, Head of Policy and Campaigns, Dementia Carers Count
The Big Conversation on Care online interactive platform is open until mid September.
The Commission is gathering views in other ways as well, including a Public Panel on Care. This will involve up to 150 randomly selected people who will meet to discuss the big questions on care in more depth.
The Commission will now report in 2027, a year earlier than originally planned, a clear reflection of the urgency of the need for change.
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