Changing the future of dementia care
Let’s change the future of dementia care
It’s time to end the injustices and inequalities that dementia carers face. We’re committed to amplifying carers’ voices. Dementia carers know what support they need. Help change the future of dementia care.
We carry out an annual survey of dementia carers experiences to gather insights and evidence about the challenges they experience and what needs to urgently change. Helen Pyper, Head of Policy and Campaigns, Dementia Carers Count
dementia carers say they do not receive any support
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Survey
of dementia carers often feel that they cannot continue to care
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Survey
dementia carers have no plans in place if they are unable to care
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Survey2025 Dementia Carers Count survey results
Our 2025 survey results highlight the huge impact of caring for someone with dementia. Carers face multiple challenges day in and day out. They feel ignored and exhausted. They know what needs to change to make caring for a family member with dementia more manageable.
dementia carers want a single point of contact to help them access support
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Survey
dementia carers want emotional support
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 Survey
dementia carers want practical advice
Source: Dementia Carers Count 2025 Survey
Dementia Carers Count 2025 SurveyWe’re doing everything we can to raise and amplify dementia carers’ voices and experiences. We’re in regular contact with elected politicians and people who are making decisions and recommendations about health and social care funding and resources.
We need your support to make sure that the needs of dementia carers are fully understood by everyone involved in deciding what care and support will be available in future. Helen Pyper, Head of Policy and Campaigns, Dementia Carers Count
We cannot expect unpaid family members to become experts over night once someone has had a dementia diagnosis.
We cannot simply ignore carers’ own health and wellbeing needs.
Conversations and decisions about the future of dementia care must take account of the needs of unpaid carers.
You can help make a difference to the support dementia carers receive
We cannot keep speaking up without your support.
This year there are important opportunities to ensure that dementia carers’ needs are met.
We’re expecting recommendations to overhaul the way adult social care is funded and resourced.
We’re also expecting a consultation on how the NHS will support patients with dementia.
Our survey findings enable us to share vital information about what dementia carers need with the people who are working on what health and social care support will look like in future.
There are lots of ways in which you can get involved.
Join our campaign community
By joining our campaign community, you’re joining a network of people who are passionate about making life better for dementia carers. You can do as much or as little as you like. This year, there will be opportunities to:
- Help us share our survey findings far and wide
- Tell us which of our findings you think are the most important and why
- Speak to journalists about what it’s like to be a dementia carer and what needs to change
- Meet elected officials and policy makers to share your experience of being a dementia carer
Donate so we can act on our survey findings
Your support can make a huge difference to what we are able to do to raise the profile of dementia carers experiences and needs.
From the cost of a stamp to send clear information to an elected politician, to enabling us to pay train fares and respite care costs so a dementia carer can come and share their lived experience with people making decisions about how social care could be funded.
Every donation helps and enables us champion the needs of dementia carers. Sofie Fritz, Public Fundraising Manager, Dementia Carers Count
Your support can help us act on our latest survey findings.
You can enable us to share evidence with decision-makers across the UK and make sure that dementia carers are heard and understood by those with power to make a difference to their lives.
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Too many dementia carers are reaching crisis
Our 2025 survey findings are a stark reminder of the relentless challenges faced by dementia carers. Too many are reaching crisis.
Make dementia carers’ voices heard
Your support can help ensure dementia carers’ voices are heard and their experiences and needs are understood by people who are making decisions about the future of health and social care.
Join our campaign community
Help us make dementia carers’ voices heard.
