What if…I’m not there to care?
What if…I’m not there to care?
Our 2024 survey findings
Our findings from our 2024 survey reveal that over three quarters of dementia carers don’t have an alternative care plan in place if they’re not there to care.
Our 2024 survey findings
Our research shows that over three quarters (76%) of dementia carers do not have any contingency plans in place for when they aren’t there to care.
Most unpaid dementia carers are family members looking after a spouse or partner (47%) or a parent (45%). Over half (52%) are caring without any support and many have their own health issues. Over a quarter (28%) of respondents consider themselves to be disabled.
Many feel anxious about the future. A third can see a time ahead when their physical health will impact their ability to care and a third can see a time ahead when their mental health will prevent them from being able to continue caring. Some are facing challenges right now in terms of not being able to access the healthcare that they need.
We continue to rely on family carers to look after a growing number of people living with dementia. What happens when they can’t care?
Carers shouldn’t be caring at the expense of their own health or worrying about the future if they aren’t there to care. If there’s a crisis, decisions can be made that might not be right for the person with dementia who suddenly needs alternative care. This has to change.
We have recommendations about how government, local authorities, health and care commissioners and health and social care professionals can help dementia carers write a contingency care plan. Frances Lawrence, CEO, Dementia Carers Count
What if…life was better for dementia carers?
At Dementia Carers Count, we believe every dementia carer deserves the support they need. Based on our survey findings, we’re launching our ‘What if…’ campaign to spark conversations and inspire change.
Imagine a world where dementia carers are truly understood, empowered, and supported. What if…
What if…your story could make a difference?
If you are a dementia carer, you may have faced an unexpected situation when you were unable to care. Or you may be worried about the future. Can you share your story? You can help us ensure that dementia carers get the support they need to plan for when they’re not there to care.
About Dementia Carers Count
We campaign with dementia carers on the issues that matter to them. We also provide free, confidential practical and emotional support to carers, through online information and resources, support groups and our carer support line. Call 0800 652 1102 Monday to Friday 9 – 5.
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