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What if…there’s an emergency?

What if…there’s an emergency?

Elaine was struggling to remain conscious after being admitted to hospital, but needed to find care for her mum

Dementia Action Week 2025

This Dementia Action Week, we’re speaking out and we’re speaking up for dementia carers who don’t have any alternative care arrangements in place. This is the case for over three quarters of dementia carers.

What happens if there’s an emergency?

One in two carers say there is no-one else available to care.

Elaine’s experience

Elaine shares how worried she felt when she was admitted to hospital for emergency care and there was nothing set up to look after her mum.

My mum, who has also always been my best friend, came to live with me in 2019, when her vascular dementia was clearly interfering with her ability to continue living safely in her own home. Despite my having to work in a very demanding job, and having no additional support, we managed.

However, in May 2021, I became very ill and was told I had to go to A & E, where I was diagnosed with septicaemia and told I would have to be admitted. After pleading with the duty doctor, I was allowed to return home to put my mum to bed and settle her and to explain to her that I would have to go to hospital for a little while.

After a scan, I was told that I had a liver abscess and kidney abscess which had caused the septicaemia and that I would have to be admitted.

I was struggling to stay conscious at this point but had to find some care for my mum.

I was told that she wouldn’t be eligible for social care. All they could do would be to admit her to hospital too, so that at least she was safe.

I will always remember how awful it was to be feeling so very ill and so very, very worried about my mum.
Elaine, dementia carer

Campaign with us

We are sharing dementia carers’ experiences with policymakers in Wales, Scotland and England.

We’re highlighting the urgent need for all dementia carers to have the support they need to care today and to plan for tomorrow, when they can’t care.

Donate to support our campaigning work

You can also help us raise awareness of dementia carers needs by donating to support our work.