What if…I wasn’t so terrified of what might happen?
What if…I wasn’t so terrified of what might happen?
Angela worries a lot about what would happen to her husband if she becomes ill
Dementia Action Week 2025
This Dementia Action Week, we’re speaking out and we’re speaking up for dementia carers who don’t have any alternative care arrangements in place. This is the case for over three quarters of dementia carers.
What if I can no longer care?
One in three dementia carers can see a time ahead when they won’t be able to care.
dementia carers can see a time ahead when they will no longer be unable to care
Source: Dementia Carers Count 2024 Survey
What if…I’m not there to care?Angela’s experience
Angela is her husband’s sole carer. They have no family close by and Angela worries a lot about what would happen if she becomes ill.
I care for my husband who has middle stage mixed dementia and third stage bowel cancer. We live in a rural situation which I think would be described as a hamlet. We do have a few kind neighbours within walking distance but like us they are all elderly.
We no longer have a car but a neighbour can usually be found to take us for my husband’s hospital appointments and one or other of them will come and stay with him for an hour if I need to see a doctor, for example.
Luckily, up to now I am in good health as I am my husband’s sole carer. We have no family close by. Our daughter lives in South America.
I worry a lot about what would happen if I become ill – in fact I lie awake for hours on many occasions because of this.
An alternative care plan would be wonderful, the sooner the better for me. Angela, dementia carer
Campaign with us
We are sharing dementia carers’ experiences with policymakers in Wales, Scotland and England.
We’re highlighting the urgent need for all dementia carers to have the support they need to care today and to plan for tomorrow, when they can’t care.
Donate to support our campaigning work
You can also help us raise awareness of dementia carers needs by donating to support our work.
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