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Jonathan stopped working to care

Jonathan* stopped working to care for his mother who had vascular dementia

Jonathan moved in with his mother during the pandemic. He decided to stay living with her and stopped working to care for her as she needed constant support as her dementia progressed.

Having decided to care for Mum at home, I struggled with the weight of responsibility I felt for her health and wellbeing. I became anxious trying to do my best, knowing that I am not a care professional.

Jonathan stopped working to care for his mum. He soon realised that he had normalised a huge amount of stress when he was combining working full time and caring.

Jonathan valued being able to focus his energy and attention on his mum, but also felt isolated after he stopped working to care. He felt like he had lost part of his identity.

Jonathan joined one of our online peer support groups and benefitted from being able to connect with other carers and listen to their experiences. This helped him to plan and cope.

Jonathan found our online resources incredibly helpful as they cover many different topics and are aimed specifically at carers. He was able to make more sense of all that was happening as his mum’s dementia progressed and felt a bit more prepared for what might come next.

When his mum was first diagnosed with dementia he was totally overwhelmed. No-one could give him a straight answer about what to expect. He struggled to find resources that answered the questions he had as a carer.

Our friendly team of specialists was always just a phone call away. As Jonathan’s mum’s needs changed as her dementia progressed, he called us for advice and guidance. We helped him manage his mum’s diet and suggested ways he could better communicate with her as she started to speak and understand less. We were here for Jonathan as his mum approached the end of her life.

I really value the unconditional support Dementia Carers Count has given me. There has always been someone there for me. Whoever I speak to really listens to what I am saying and accepts what I’m sharing and experiencing. There isn’t any judgement. I’ve never felt dismissed or patronised. Quite the opposite. When I speak to someone, I feel like I matter. *Name changed to protect identity