What if…my own health didn’t have to suffer?
What if…my own health didn’t have to suffer?
Debbie has to continue her caring role however she is feeling. She has no time to look after her own health needs.
Dementia Action Week 2025
This Dementia Action Week, we’re speaking out and we’re speaking up for dementia carers who don’t have any alternative care arrangements in place. This is the case for over three quarters of dementia carers.
What if dementia carers could look after their own health needs?
One in five dementia carers can’t access the treatments or appointments they need.
dementia carers can’t access the health treatments or appointments they need
Source: Dementia Carers Count 2024 Survey
What if…I’m not there to care?Debbie’s experience
Debbie has to continue her caring role however she is feeling. She has no time to look after her own health needs.
I’m a full time carer for my husband who has had Alzheimer’s for 6 years. He’s now at the stage where he panics if he doesn’t know where I am. He needs help with feeding, washing and toileting. He wakes up throughout the night and has to be put back to bed.
I recently had a very bad and painful case of shingles – I was receiving anti virals. We have no family other than my son who was working away. This meant there was no way I could rest.
I had to continue my caring role despite being in severe and constant pain in my back and feeling extremely ill and fatigued.
The same situation happened a year ago when I had covid. I’ve an auto immune condition myself and just have to get on with caring however I am feeling.
I also need surgery on my knee but haven’t been able to arrange a date as I won’t be able to take time out afterwards for recovery. Debbie, dementia carer
Campaign with us
We are sharing dementia carers’ experiences with policymakers in Wales, Scotland and England.
We’re highlighting the urgent need for all dementia carers to have the support they need to care today and to plan for tomorrow, when they can’t care.
Donate to support our campaigning work
You can also help us raise awareness of dementia carers needs by donating to support our work.
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