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We need gold standards in dementia care and support

Dementia carers need support after a diagnosis

Investment in improved diagnostic tools needs to be matched by investment in the care and support available to families after a dementia diagnosis.

Today’s news about ongoing research into a reliable blood test to improve dementia diagnosis is to be welcomed. It’s important that dementia is in the headlines as it has a devastating impact on so many of us.

However, investment in improved diagnostic tools needs to be matched by investment in the care and support available to families after a diagnosis. Gold standards in dementia diagnosis are not enough. We need gold standards in care and support as well.
Frances Lawrence, CEO, Dementia Carers Count

Too many dementia carers simply feel invisible, overwhelmed and alone. Too many carers do not receive any support after a diagnosis and are left struggling.

This is why we campaign for changes in dementia care and support.

We have recommended to the Casey Commission that after a diagnosis carers should have access to a single point of contact, who can guide and support them from the moment of diagnosis onwards.

We are also calling for more funding for social care so that carers get the support that they need.

In the meantime, our We See You campaign is a reminder to carers that they are not alone.

We know they are there and we are here to help.

Sources

About Dementia Carers Count

We campaign with dementia carers on the issues that matter to them. We also provide free, confidential practical and emotional support to carers, through online information and resources, support groups and our Carer Support Line. Call 0800 652 1102 Monday to Friday 9 – 5.