We would like to thank every carer who took the time to complete our 2025 survey. We’ll be acting on what you told us and speaking up and drawing attention to what must urgently change so that all dementia carers get the support they need.

Everyone’s experience of caring is unique. What you tell us will help us better understand the pressures on family carers, shape the services we provide and help us to prioritise what we ask the government to address. 

Last year, we heard from over 1,200 carers who told us about their caring roles. Over three quarters of respondents shared that they didn’t have any plans in place if they were unable to care. This is very stressful for carers. We went on to gather more testimonials about the challenges of not having alternative care plans in place.

We then shared dementia carers’ experiences, alongside our survey findings, with politicians and policy makers who can make a difference. We went to Downing Street, the Scottish Parliament and the Senedd in Wales.

We are continuing to meet with health and social care policy leads across the UK to share our findings and your stories. We’re pushing for improvements to available support.

For the past three years, 9 out of 10 carers who have responded to our survey have told us that they have reached crisis point at least once. This year, we wanted to find out more about:

• the times you’ve struggled to care
• when you’ve felt that you’ve reached a crisis point
• the support you’ve needed

Everything you told us helps us better understand the challenges dementia carers face. We’ll be speaking up and drawing attention to what must urgently change so that all dementia carers get the support they need.