Emma found managing care a constant battle
Emma* cares for her dad who has frontotemporal dementia and alcohol-related brain damage
Emma found managing her dad’s care a constant battle
Our lives changed the day we called Dementia Carers Count. The team’s support has been amazing. We have felt heard and understood in truly awful times.
Sisters Emma and Sarah have struggled to care for their dad, who has frontotemporal dementia and alcohol-related brain damage. With young families of their own, it’s been hard to manage all their caring responsibilities. Their dad’s behaviour has changed enormously over the past few years. It now isn’t safe for him to be on his own. The sisters have been pushed to their limits. Every conversation with a health and social care professional to try to manage their dad’s care has felt like a constant battle.
Confidential advice
Emma called our Carer Support Line for some confidential advice. This first call was the start of an invaluable relationship with our expert team, who have provided information, advice, emotional support and direct advocacy for Emma and her family.
When I first contacted Dementia Carers Count, I was on the brink of being in crisis. I was incredibly anxious and felt like I didn’t have a grip on all that was happening. After being in touch with the team, I could breathe again. I felt validated. Someone actually listened to me and took me seriously. Not only that, they went on to support my sister and I to get the right care for dad, whilst giving us the emotional support that we desperately needed.
Our lives changed the day we called Dementia Carers Count. The team’s support has been amazing. We have felt heard and understood in truly awful times. Katy has helped us to understand our dad’s behaviours. She’s also had the knowledge and expertise to guide my sister and I through difficult conversations with professionals involved in caring for our dad. She’s advocated for us and it has made a world of difference to feel like we have someone on our side. Our challenges continue, there’s no let up from the remote support we have to provide every single day, but we know we are not alone. *name changed to protect identity
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