New recommendations for palliative dementia care
New recommendations for palliative dementia care
New recommendations for palliative dementia care must be acted on. End of life care must improve for those living with dementia and their carers.
Our CEO, Frances Lawrence, Julia Mazorodze, our Director of Communications and Growth, and Helen Pyper, our Head of Policy and Campaigns, attended a reception at the House of Lords, hosted by Baroness Finlay of Llandaff, for the launch of new policy recommendations for palliative dementia care from the Empowering Better End of Life Dementia Care programme – EMBED-Care
This six-year research programme has considered current and future needs for integrated palliative dementia care across the UK population. Bringing together collaborators, clinicians, policy makers, patients and families, the research reveals how to meet the physical, psychological, social and spiritual needs of people dying from dementia and their carers.
Dementia is the most common cause of death in the UK. Family carers have a massive role to play in supporting people with dementia at the end of life. It’s vital that they get the support that they need.
Frances Lawrence, CEO, Dementia Carers Count
We provide emotional and practical support to dementia carers and our resources include information about how dementia carers can look after their own emotional well-being when they are struggling to cope.
Earlier this year, I visited the powerful Dementia Journeys exhibition, which emerged from EMBED-Care’s work. It shared stories of people, like Keiko, who have cared for loved ones dying with dementia. The exhibition, like these recommendations, prompts us all to consider the complexities of people’s needs and the importance of their wishes for end-of-life care. Frances Lawrence, CEO, Dementia Carers Count
About Dementia Carers Count
Dementia Carers Count is a small but mighty charity, powered and inspired by dementia carers’ experiences and insights and driven by the urgent need for change. We are here to listen, to support and to help dementia carers. We provide free, personal and confidential practical advice and emotional support. Every day our team of specialist advisors supports carers across the UK. Our Carer Support Line can be reached for free on 0800 652 1102 Mon-Fri 9am-5pm
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New recommendations for palliative dementia care
New recommendations for palliative dementia care must be acted on. End of life care must improve for those living with dementia and their carers.