Dementia Action Week 2025
Dementia Action Week 2025
We’re speaking up and sharing dementia carers’ stories and experiences
This Dementia Action Week, we’re speaking out and we’re speaking up for dementia carers who don’t have any alternative care arrangements in place. This is the case for over three quarters of dementia carers.
Our 2024 survey findings
Our research showed that over three quarters (76%) of dementia carers do not have any contingency plans in place for when they aren’t there to care.
Most unpaid dementia carers are family members looking after a spouse or partner (47%) or a parent (45%). Over half (52%) are caring without any support.
Many have their own health issues and feel anxious about the future. A third can see a time ahead when their physical health will impact their ability to care. A third can see a time ahead when their mental health will prevent them from being able to continue caring.
Some dementia carers are facing challenges right now in terms of not being able to access the healthcare that they need.
Dementia carers’ experiences
We invited dementia carers to share their personal experiences of not having alternative care arrangements in place. Carers told us about their struggles to continue caring and their worries.
This Dementia Action Week, we are sharing their experiences with those with responsibility for supporting dementia carers in England, Scotland and Wales.
Urgent need for national carers’ strategies to be implemented
We are calling for the implementation of national carers’ strategies. These should outline carers’ rights and what support they should receive.
Each nation must fully implement a carers’ strategy which outlines carers’ rights and what support they should receive.
This should include provision for regular, proactively offered and frequently reviewed, assessments of carers’ needs and plans for contingency or alternative care.
All adult social care must be sustainably resourced to enable delivery of personalised support. What exists on paper must be delivered in practice. Helen Pyper, Head of Policy and Campaigns, Dementia Carers Count
Donate to support our campaigning work
You can also help us raise awareness of dementia carers needs by donating to support our work.
About Dementia Carers Count
We campaign with dementia carers on the issues that matter to them. We also provide free, confidential practical and emotional support to carers, through online information and resources, support groups and our carer support line. Call 0800 652 1102 Monday to Friday 9 – 5.
Donate to support our campaigning work
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