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Time to think about a care home?

One of the most difficult life events, is when someone with dementia needs to move into a care home.

Carers say that deciding to move someone to a care home is the hardest decision they have ever had to make. Jenny Park, Director of Services, Dementia Carers Count

Thinking about moving someone you are caring for into a care home

Reaching a stage when you are thinking about moving someone with dementia into a care home can be an anxious and traumatic time. Perhaps this is your husband, wife, mother, father who, for many different reasons, is no longer able to live at home.

For the person with dementia, the decision to move into a care home isn’t one usually made by them. The decision usually falls to family, carers or those closest to them. The weight and range of emotions this carries is often unexpected and leaves carers feeling unprepared.

Reasons why you might be considering moving someone to a care home

There are a number of reasons why you might be thinking about moving the person you care for into a care home.

Personal choice of the person with dementia

It may be that the person with dementia has expressed a wish that at a certain stage of their illness, they would rather move to a care home. They may currently have capacity to express that wish or have left an advanced directive expressing this preference.

Significant deterioration

The health of the person you are caring for may be deteriorating. This may be because their dementia is progressing or because of another illness or a fall.

The person’s mobility may be becoming increasingly restricted.

The person’s cognitive ability may be declining and it may be becoming harder for them to remain safely in their own home.

As a carer you can no longer cope

There may come a time when you cannot provide the level of care that the person you are caring for needs.

Or you may have previously had support from another relative or neighbour and this is no longer the case.

Preventing loneliness or depression

The person with dementia may be showing signs of loneliness, isolation or depression.

The person’s home has become a distressing place

For some people with dementia their home may become a distressing place for them. This may be due to delirium or them feeling disorientated.

There are no other options

Without an available or capable carer, there is often a point when there is no other alternative for a person with dementia than to be placed in a 24-hour care home.

Emotions you may experience

There are many different emotions carers experience when weighing up the best interests of the person they are caring for and their own ability to cope.

Some carers may be contending with having the words “Never put me in a care home” echoing around their mind.

You may experience feelings of failure or guilt or indeed a huge sense of loss. These emotions can be overwhelming and make it harder to make a decision.

Are you coping as a carer?

As we know, individuals are different, unique and complex, as are relationships. Decisions are the same. Each decision is unique and needs to be made according to the information that you have as individuals – in the best interests of the person you look after, as well as you. Jenny Park, Director of Services, Dementia Carers Count

When considering the best option, it’s important to be honest about how well you are coping as a carer.

Family carers often keep going, because it feels as if there is no alternative.

Reaching the decision that you can no longer do this, can be a last resort. You may feel that you are reaching breaking point.

If you are feeling this way, you need to look after yourself. Deciding to move the person you are caring for into a care home, means that you are making sure that they are going to be looked after and safe.

Court of Protection

There is an option to move the decision to a third party. A legal decision can be made via the Court of Protection.

How to choose a care home

The transition to permanent 24-hour care doesn’t often happen overnight. Usually, there will have been challenges over a period of time. Often the move is something a carer has been considering for a while.

You will feel more in control of your decision if you are able to make some choices. If possible, you may be able to find out about and visit several care homes. Visiting in person may help you make a choice that you feel more comfortable with.

You will also need to find out about vacancies and costs. You may be eligible for some support.

Find out more about how to choose a care home
Find out more about how to choose a care home

Care home costs

Financially, the cost of care home placements can be a heart-breaking issue in itself.

The person needing care may have worked all their lives, wanting to leave a legacy behind for their children. It can be hard to balance out what is in their best interest and the financial impact of a care home place. This can cause tensions in families.

Perhaps one family member feels that they want to continue caring, whilst another is now unable to continue to assist.

It can be difficult to come to terms with losing a substantial amount of savings, or estate, to care home costs.

You may be eligible for some support.

Find out more about paying for care
Find out more about paying for care

How to make the most of a care home visit

Visiting the person you care for when they are living in a care home can be an emotionally challenging experience.

Building a positive relationship with care staff and planning ways to keep visits calm and happy will make visiting easier.

You need to develop coping strategies and be able to manage the complex emotions you may experience before, during and after a visit.

Find out more about how to make the most of a care home visit
Find out more about how to make the most of a care home visit

What are the alternatives to care homes

There are alternatives to care homes, including home care services which can help support someone to stay living in their own home and extra care housing options.

Find out more about alternatives to care homes
Find out more about alternatives to care homes