What we do

We support, advocate and campaign for dementia carers so that no-one feels isolated, invisible or alone.​

Dementia Carers Count is a national charity which provides support to people caring for someone living with dementia. ​​Alongside carers, we campaign for changes and support needed to stop dementia carers feeling overwhelmed, invisible and alone. ​

Read our strategy

Services for dementia carers

​We are here to help.​ We provide free expert advice and support from healthcare, social work and advocacy professionals to dementia carers when they want it and for as long as they need it.​ It’s designed to give you the skills and confidence to navigate each step of your journey as a dementia carer.

  • Practical tips that you can use every day in our online information
  • A place to to get things off your chest and talk to others in the same situation – our online groups
  • We’re here to listen when you just need someone to help – confidential one-to-one advice on our Carer Support Line – call 0800 652 1102 Mon-Fri 9am to 5pm

We know how hard it can be to be responsible for that person who really needs you, when dementia is a complex, ever-changing condition that can’t be seen. It’s not something you’ve chosen, but it affects every facet of your life.

We believe that dementia carers count and we are here for you.

Campaigning for change

There are nearly one million unpaid carers looking after someone with dementia. Most receive no support and feel invisible. Our research has shown that nine in ten dementia carers are reaching crisis points.

This must change.

Together we can campaign for changes today to improve what care and support is available for dementia carers in the future.

Learn more about our campaigns >

Dementia carers:

the UK stats and facts

There are

700,000

Family carers of people with dementia in the UK
This figure is set to rise to

850,000

in line with the number of people who will develop dementia
And expected to increase to

1.6m

in 2040*
‘Unpaid carers’ provide care to a value of

£13.9bn

families and friends provide care to this value on an annual basis*
This will increase to

£35.7bn

by 2040*

2/3

of people with dementia live at home, most supported by unpaid carers

20%

of dementia carers are in paid work

£3.2bn

is the estimated cost of lost working time due to caring in 2019***

36%

of family carers provide over 100 hours of care per week***

10%

of family dementia carers live in property***

The economic impact of dementia is greater than cancer and heart disease combined.***

Sources: carers.org.uk, 2018

* Alzheimer’s Society Dementia UK 2014 report updated in 2019 to predict trajectories up to 2040 using the 2014 data. Therefore, figures are best estimates of the current position of play.

** Projections of older people with dementia and costs of dementia care in the United Kingdom, 2019-2020

*** Cebr report for Alzheimer’s Society, 2019 – the economic cost to English businesses.

About carers

Dementia will cost businesses more than £3 billion by 2030, with more staff leaving employment to care for people with dementia****

The number of people who will have left employment to care for people with dementia is set to rise from 50,000 in 2014, to 83,100 in 2030****

By 2030, the cost of skills and experience lost from the workforce due to dementia will rise from £628 million to £1.16 billion****

Our carers consultation found that 40% of the 700,000 people in the UK who care for someone with dementia look after that person 24 hours a day, 7 days a week.

Being a carer is demanding and challenging, carers often ignore their own needs and support across the country is patchy

20% of dementia carers are in paid work but the estimated working time lost due to caring was £3.2bn in 2019****

About dementia

One in 14 people over 65 have dementia in the UK*

1 in 3 people born in the UK this year will develop dementia in their lifetime*

By 2025 the disability related to dementia will increase by 40% among people aged 65 to 84**

65% of people living with dementia are women. 35% are men*

An estimated 70,800 people in the UK are living with dementia at a younger age (under 65) ***

In 2015, the annual economic impact of dementia in the UK was estimated at £24bn. This is expected to rise to £32.5bn in 2025 and £59.4bn by 2050

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