About our research – for Carers 

Research can be described as a ‘systematic investigation into something to gain a better understanding of it or discover something new’. There are lots of different kinds of research ranging from those that test things in trials such as new drugs to those that observe people or perhaps survey or interview them.

Here at Dementia Carers Count, we are concerned with making family carers lives better. To do this our research will investigate family carer’s experiences of caring and their needs. We will also look at what activities or initiatives help carers (‘interventions’) and what effect these have on them (‘outcomes’).  Good quality research will help us understand what works, when, for who and under what conditions.

To achieve good quality research we need to have well-designed research studies that address the concerns of carers and here at dementia Carers Count, we want to research carer’s priorities. Our expectation is that our research work will be useful to carers and directly help them go about their daily lives and fulfil their caring role. Our research may also benefit carers in a less direct way, perhaps through developing staff and services that support carers or in helping to develop technologies that work for carers in the real world.

One way we are ensuring our research is of a good quality and valuable to carers and those who work with carers, is to have jointly-funded our Professor in Family Care in Dementia, Tracey Williamson. Tracey is based at the University of Worcester in the Association for Dementia Studies and she leads our research programme. It is very important to us that all our research is underpinned by carer involvement in the following ways as a minimum:

  • identifying research topics
  • prioritising research topics
  • agreeing approaches for doing the research

 

In addition to these activities, we will seek opportunities for carers to be involved in:

 

  • helping to do the research (where appropriate)
  • sharing of research findings

 

You can find out more about ‘Patient and Public involvement (PPI) in research at INVOLVE www.invo.org.uk

 

As we grow our research activities, there will be more and more opportunity for your involvement.

If you are interested in finding out more about how you can be involved in our research, you can contact us on Research@dementiacarerscount.org.uk or telephone 01905 542557

We look forward to hearing from you!