I didn't Sign up for this campaign banner, featuring an older woman looking into space against a grey background with 'I didn't sign up for this' highlighted. Text says 'Carers are struggling to cope. Pledge your support to show carers they're not alone'

Pledge your support for dementia carers

Many dementia carers struggle to cope. Even when it’s someone you love, caring with no practical or emotional support can push people to breaking point. Husbands, wives, children and siblings are being overwhelmed. Most never anticipated how their closest relationships would change. Some feel very alone. Some feel invisible. Nine in ten are reaching crisis.

They didn’t sign up for this.  

Can you let dementia carers know they’re not alone and that you believe they urgently need and deserve support?

Pledge your agreement today, and together, we can make tomorrow better for dementia carers. 

We’re here to help anyone caring for someone with dementia. Our caring team of specialists support people with confidential advice and guidance on practical, emotional and financial issues. People like Emma*:

Emma’s Story

Sisters Emma and Sarah have struggled to care for their dad, who has frontotemporal dementia and alcohol-related brain damage.

With young families of their own, it’s been hard to manage all their caring responsibilities. Their dad’s behaviour has changed enormously over the past few years. It now isn’t safe for him to be on his own. The sisters have been pushed to their limits. Every conversation with a health and social care professional to try to manage their dad’s care has felt like a never-ending battle. 

Confidential advice

Emma called our Carer Support Line for some confidential advice. This first call was the start of an invaluable relationship with our expert team, who have provided information, advice, emotional support and direct advocacy for Emma and her family:

“When I first contacted Dementia Carers Count, I was on the brink of being in crisis. I was incredibly anxious and felt like I didn’t have a grip on all that was happening.

After being in touch with the team, I could breathe again. I felt validated. Someone actually listened to me and took me seriously. Not only that, they went on to support my sister and I to get the right care for dad, whilst giving us the emotional support that we desperately needed. 

Campaign image for 'I didn't sign up for this' close up of a a young woman with dark hair staring into the camera overlaid with the heading 'I didn't sign up for this' and text 'Pledge your support to show carers they're not alone'

Lives changed

“Our lives changed the day we called Dementia Carers Count. The team’s support has been amazing. We have felt heard and understood in truly awful times. Katy has helped us to understand our dad’s behaviours. She’s also had the knowledge and expertise to guide my sister and I through difficult conversations with professionals involved in caring for our dad. She’s advocated for us and it has made a world of difference to feel like we have someone on our side. Our challenges continue, there’s no let up from the remote support we have to provide every single day, but we know we are not alone.

If you know someone who is a dementia carer – please pass on our number 0800 652 1102 to them. We’re here for any practical and emotional support they might need. We want to reach people before they reach breaking-point.

Dementia will affect one in two of us

One in two of us will be affected by dementia in our lifetime, either by caring for someone, developing the condition, or both.(1)

Our research shows that

  • Nearly 40% of dementia carers are caring 24/7
  • One in three dementia carers have poor mental health
  • Less than a third of dementia carers feel that they have been able to access support when they have needed it
  • Nine in ten dementia carers are reaching crisis and are struggling to cope

We are campaigning for changes to how carers are identified, recognised and supported from diagnosis onwards.

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  1. Estimating the potential future impact and return on research investment in dementia. Office of Health Economics for ARUK. June 2023

*names changed to protect identity