Carers are struggling to cope – and it’s getting worse

Our 2023 carer survey indicates that 9 in 10 dementia carers are reaching crisis points.

Carers are legally entitled to support to help prevent them from feeling overwhelmed and in crisis.

However, carers are telling us that they’re not getting the support they need when they need it.

Instead, they feel invisible to those they care for, invisible to health and social care professionals, invisible to policy makers, and invisible to society at large.

Invisible – our survey findings

Unsupported

  • 49% of carers are confused by the information available.
  • Only 51% of carers have had a Carer’s Assessment.
  • Of those who have had a Carer’s Assessment, 36% never received their support plan.

Unheard

  • 31% of carers feel negative or very negative about their caring experience.
  • While carers are now recognised in law, the legislation has never been backed up with resources.
  • 89% of carers have reached crisis point at least once, with 29% having to manage crises often.

Unseen

  • 47% of all dementia carers say they care ’24/7′ or cannot leave the person they care for on their own.
  • Dementia carers tell us they have no support and describe feeling “trapped” – often physically – in their own home.
  • Carers talk about how their world shrinks, how friends disappear, and how a lack of social interaction makes them feel isolated and alone.

What’s needed

Prioritisation of social care across the UK

A carer’s strategy in England and the prompt implementation of carer’s strategies in Scotland and Wales

Collaborative working to ensure early identification

Earlier recognition and involvement of family carers

Carer’s Assessments which provide access to a personalised support plan

Personalised support, addressing practical, emotional, and financial needs

A better informed, supportive public

You can help us

Our carers are telling us that they’re not getting the support they need when they need it.

Instead, they feel invisible to those they care for, invisible to health and social care professionals, invisible to policy makers, and invisible to society at large.

It is vital that the decision makers listen to and meet the needs of family carers.  Join hundreds of people like you who care about family carers and help us improve the support they receive.